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Medicaid Estate Recovery by State 2026: $733.4 Million Collected in FY 2019, Five States 38.5% of It

By Jorge··24 min read

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Quick Answer

In FY 2019, the last year for which all states' collections are public, states recovered about $733.4 million from the estates of Medicaid enrollees, and five states (Massachusetts, New York, Pennsylvania, Ohio and Wisconsin) accounted for 38.5 percent of it (MACPAC, March 2021, from CMS-64 reports). As of November 8, 2026, federal law (42 U.S.C. 1396p(b)) requires a state to recover only from the probate estate of a person who was 55 or older when receiving nursing facility, home and community-based and related hospital and drug services, and lets each state choose to reach assets that pass outside probate. Of the nine states whose legal text we could read, California (for deaths from January 1, 2017), Massachusetts, New York, Texas and Florida stay with the probate estate, and Ohio, Minnesota, Washington and Oregon use the expanded definition. For the other 42 jurisdictions we did not verify the definition, and the table says so.

Key Takeaways

  • States collected approximately $733.4 million from beneficiary estates in FY 2019, equal to 0.53 to 0.62 percent of fee-for-service long-term care spending in each of FY 2015 to FY 2019; Iowa recovered 14.49 percent of its fee-for-service LTSS spending and Hawaii, Louisiana and West Virginia 0.02 percent (MACPAC, March 2021). Delaware and Vermont reported no collections for FY 2016 to FY 2019.
  • The federal floor is the probate estate (1396p(b)(4)(A)); a state ‘may include, at the option of the State’ assets conveyed by joint tenancy, tenancy in common, survivorship, life estate, living trust or other arrangement (1396p(b)(4)(B)). Whether a non-probate asset is reachable is therefore a state question.
  • We read nine state texts. Probate estate only: California (deaths on or after January 1, 2017), Massachusetts (and, from August 1, 2024, only federally mandated services), New York (the 2011 expansion expired December 6, 2011), Texas and Florida (a claim in the probate proceeding). Expanded: Ohio, Minnesota, Washington and Oregon.
  • Federal law blocks recovery while a surviving spouse is alive or a child under 21, or a blind or disabled child, survives (1396p(b)(2)(A)), and requires every state to have undue hardship waiver procedures (1396p(b)(3)(A)). MACPAC found 36 state plans with a sole-income-producing-asset criterion but only 8 with a home-of-modest-value criterion.
  • 26 states imposed TEFRA liens and 19 imposed post-death liens in their 2020 state plans (MACPAC Table 3C-1). A pre-death lien on the home is barred while a spouse, a minor or disabled child, or a qualifying sibling lives there (1396p(a)(2)).
  • 35 state plans say the state does not seek recovery when the person had a long-term care partnership policy (MACPAC Table 3C-2), and federal law carves out the insurance benefit amount for partnership states (1396p(b)(1)(C)).
  • Worked example (our arithmetic): a $380,000 house and a $90,000 IRA go to a daughter and the state paid $210,000 for care after age 55. If the house passes outside probate, a probate-only state recovers $0 and the daughter receives $470,000; an expanded-estate state recovers $210,000 and she receives $260,000.

CSV · 247 rows

Medicaid estate recovery by state: 42 U.S.C. 1396p(a)-(b) rules, MACPAC FY 2019 recoveries and 2020 state plan policies for all states, nine state estate-definition texts, and a $470,000 worked example

247 rows: ten rules from 42 U.S.C. 1396p(a) and (b), national totals from MACPAC, the estate definitions of nine states, FY 2019 recoveries and long-term care spending, TEFRA lien and partnership flags for each of the 51 jurisdictions, and the worked example marked as our arithmetic.

Who this page is for, and what is different about it

The reader is a retiree, a spouse, or an heir whose parent or relative has needed, or may need, nursing-home care paid by Medicaid, and who holds a home plus retirement accounts or other property. Our page on the 60-month look-back, trusts and rentals covers eligibility and the transfer penalty. This page covers the other end: what a state can claim after death, state by state, using the one national dataset of recoveries (MACPAC) and the text of the statutes we could read. It does not tell you what to do with your property.

Two warnings about data. First, the national recovery figures are for FY 2019, because MACPAC’s FY 2015 to FY 2019 table, built from CMS-64 collections, is the latest all-state dataset we found; KFF repeated it in September 2024 as the most recent year for which data are publicly available about all states’ collections. Second, MACPAC states that the amounts “reflect amounts reported as probate collections”, so recoveries from non-probate assets in expanded states may be reported differently or not captured in that line (our reading: the note does not say).

What federal law requires, and what it leaves to each state

RuleWhat 42 U.S.C. 1396p saysWho decides the details
Required recoveryFor a person 55 or older when assisted, the State must seek recovery from the estate for nursing facility services, home and community-based services and related hospital and prescription drug services (1396p(b)(1)(B)(i))Federal; the state sets a cost-effectiveness threshold
Optional recoveryAt the State’s option, any items or services under the state plan, but not Medicare cost-sharing (1396p(b)(1)(B)(ii))State: 36 of 51 state plans recovered non-mandatory services for people over 55 in 2020 (MACPAC Table 3C-1)
Permanently institutionalized, any ageFor a person who has a pre-death home lien under (a)(1)(B), the State must seek recovery from the estate or on sale of the property subject to the lien (1396p(b)(1)(A))State, within the hearing procedure required by (a)(1)(B)(ii)
Surviving spouse, young or disabled childRecovery only after the death of the surviving spouse, and only when there is no surviving child under 21 or blind or disabled (1396p(b)(2)(A))Federal; MACPAC adds that states may exempt such estates rather than pursue them after the spouse’s death
Home lien carve-outNo recovery against the home under a pre-death lien while a sibling who lived there one year with an equity interest, or a son or daughter who lived there two years and provided care that kept the person out of an institution, still lives there (1396p(b)(2)(B))Federal; the state decides whether the person qualifies
Hardship waiverThe State must set procedures to waive recovery if it would work an undue hardship under criteria set by the Secretary (42 U.S.C. 1396p(b)(3)(A))State sets its own criteria; MACPAC found them not standardized
Estate definitionMust include the probate estate (1396p(b)(4)(A)); may include, at the option of the State, other assets with legal title or interest at death, including through joint tenancy, tenancy in common, survivorship, life estate, living trust, or other arrangement (1396p(b)(4)(B))State option; the table below shows what we could read
Long-term care partnershipNo recovery of the amount of benefits paid under a qualifying partnership policy that was disregarded (1396p(b)(1)(C)(ii)); details in our [partnership program guide](/articles/long-term-care-partnership-program-asset-disregard-reciprocity-states-2026)State plan amendment; 35 plans say they do not seek recovery for these policyholders

MACPAC’s summary of the federal minimum is that states must attempt to recover “all property and assets that pass to heirs under state probate laws”, and that “both the definition of an estate and the priority of Medicaid’s claims against an estate’s other creditors vary by state”. That second point matters: a claim ranks behind secured debts and some other creditors, and an estate emptied by higher-priority claims pays Medicaid little.

Which states reach past probate: the nine states whose text we read

No single federal document lists each state’s definition. MACPAC’s tables record liens, services and hardship criteria but not the estate definition, so we went to the statutes. Nine are below (eight statutes and one Department of Health notice); for the other 42 jurisdictions the census table marks the definition “Not verified”, because we would not take it from a secondary website.

StateWhat the text saysSource we readReaches non-probate assets?
California“Estate” means “all real and personal property and other assets in the individual’s probate estate”; the section applies only to individuals who die on or after January 1, 2017, and under its age-55 paragraph the department may not claim when there is a surviving spouse or registered domestic partnerWelfare and Institutions Code 14009.5(f)(3), (b)(2)(B), (g)No, for deaths from 2017
Massachusetts“Estate” means all property “includable in the decedent’s probate estate under the General Laws”; for deaths on or after August 1, 2024 recovery is limited to nursing facility and institution care and federally mandated services at 55 or olderM.G.L. c. 118E, section 31(b1/2) and (c)No
New YorkThe expanded definition took effect for recoveries on or after September 8, 2011 and the regulation expired December 6, 2011; the Department of Health told districts they “must not include assets that pass outside of the probate estate”. We could not retrieve the current statute text and rely on this noticeDOH 11 OHIP/ADM-8 and GIS 11 MA/028No (per DOH notice)
TexasThe program rule defines estate as property included in the probate estate under the Texas Probate Code; real property passing by transfer on death deed “is not considered property of the probate estate for any purpose”, including the Medicaid recovery section. The Government Code section 531.077 was repealed effective April 1, 2025 and the duty now sits in section 546.04031 Texas Admin. Code 373.105(6); Estates Code 114.106(b); Government Code 546.0403No
FloridaRecovery is “accomplished by the agency filing a statement of claim against the estate of a deceased Medicaid recipient” in the probate proceeding; no recovery if survived by a spouse, a child under 21, or a blind or disabled child; no debt is enforced against property exempt from creditors under state lawFlorida Statutes 409.9101(2), (6), (7)Claim is filed in probate
OhioEstate includes “any other real and personal property and other assets in which an individual had any legal title or interest at the time of death”, including joint tenancy, survivorship, life estate and living trustOhio Revised Code 5162.21(A)(1)Yes
MinnesotaSubdivisions 1c to 1k “expanding the interests included in an estate”; a life estate or joint tenancy interest not under a medical assistance lien continues after death for recovery, except a homestead held with a spouse as joint tenantsMinnesota Statutes 256B.15 subd. 1(a) and 1hYes
WashingtonThe department seeks recovery “from the individual’s estate, and from nonprobate assets of the individual as defined by RCW 11.02.005”, for nursing facility, home and community-based and related servicesRCW 43.20B.080(3)Yes
Oregon“Estate” includes all assets “in which the deceased individual had any legal title or interest at the time of death”, including assets conveyed by joint tenancy, tenancy in common, survivorship, life estate or living trust; the person who receives the property carries the burden of proving the extent and value of the decedent’s interestORS 416.350(6)(a) and (4)Yes

Two of these changed recently. Massachusetts narrowed its recovery rule for deaths from August 1, 2024, and California’s 2017 amendment states its purpose as to “limit the definition of ‘estate’ to include only the real and personal property and other assets required to be collected under federal law” (14009.5(a)(2)). A statute can be changed again, and the recovery law in effect on the date services were received can matter: Washington, for one, directs the department to apply “the medical assistance estate recovery law as it existed on the date that benefits were received” (RCW 43.20B.080(4)).

The 51-jurisdiction census: recoveries, liens, partnership and what we verified

The recovery and spending columns come from MACPAC’s Table 3E-1 (FY 2019, thousands of dollars, CMS-64); the lien and partnership columns come from MACPAC’s review of state plans in 2020 (Tables 3C-1 and 3C-2). The share column is our arithmetic: recoveries divided by fee-for-service LTSS spending. Where a state delivers most long-term care through managed care, its fee-for-service base is small, so a high share (Iowa, Kansas) says little about how aggressive recovery is. MACPAC makes the same point: managed care LTSS is not in the data, and including it would lower the percentages.

StateFY 2019 recoveries ($ thousands)Share of FFS LTSS spending (our arithmetic)TEFRA liens in state planNo recovery if LTC partnership policyEstate definition read by us
Alabama7,2590.47%YesYesNot verified
Alaska2,6790.50%YesNoNot verified
Arizona2160.22%YesYesNot verified
Arkansas3,7960.27%NoYesNot verified
California28,9870.17%YesNot in plan copyProbate only (deaths from 2017)
Colorado6,4090.22%YesYesNot verified
Connecticut15,4050.45%YesNot in plan copyNot verified
Delawarenone reportednone reportedYesNot in plan copyNot verified
District of Columbia1,4610.15%NoNoNot verified
Florida22,4110.81%NoYesProbate claim
Georgia4,4810.15%NoYesNot verified
Hawaii310.02%YesNot in plan copyNot verified
Idaho11,9341.63%YesYesNot verified
Illinois25,9490.83%YesNot in plan copyNot verified
Indiana13,1980.30%YesNot in plan copyNot verified
Iowa26,48514.49%NoYesNot verified
Kansas13,24013.68%YesYesNot verified
Kentucky7,3510.34%NoYesNot verified
Louisiana4300.02%NoYesNot verified
Maine10,2480.93%NoYesNot verified
Maryland13,7010.45%YesYesNot verified
Massachusetts83,0711.70%YesNot in plan copyProbate only
Michigan6,4780.21%NoYesNot verified
Minnesota39,9050.83%YesYesExpanded
Mississippi3990.03%NoNot in plan copyNot verified
Missouri13,6950.37%YesYesNot verified
Montana4,0370.92%YesYesNot verified
Nebraska4,7420.51%NoYesNot verified
Nevada3,1540.49%NoYesNot verified
New Hampshire7,7130.97%YesYesNot verified
New Jersey13,8400.42%NoYesNot verified
New Mexico1570.03%NoNoNot verified
New York59,7600.37%YesYesProbate only (DOH notice)
North Carolina19,8420.84%NoYesNot verified
North Dakota4,4900.73%NoYesNot verified
Ohio43,7950.70%YesYesExpanded
Oklahoma5,2640.40%YesYesNot verified
Oregon31,4341.17%NoYesExpanded
Pennsylvania54,0930.60%NoYesNot verified
Rhode Island5,3810.96%NoYesNot verified
South Carolina3,8440.23%NoNot in plan copyNot verified
South Dakota2,7140.74%YesNot in plan copyNot verified
Tennessee29,4373.04%NoYesNot verified
Texas4,9960.11%NoYesProbate only
Utah5,4880.69%YesYesNot verified
Vermontnone reportednone reportedNoNot in plan copyNot verified
Virginia6,1300.27%NoNot in plan copyNot verified
Washington16,9890.45%YesYesExpanded
West Virginia2100.02%YesNot in plan copyNot verified
Wisconsin41,4002.08%YesYesNot verified
Wyoming5,3071.76%NoYesNot verified

What the census shows (our arithmetic on the table above): the eight states that recovered more than 1.0 percent of fee-for-service LTSS spending are Idaho, Iowa, Kansas, Massachusetts, Oregon, Tennessee, Wisconsin and Wyoming, matching MACPAC’s count of eight. Massachusetts alone collected $83.1 million, 11.3 percent of the national total; the five largest states sum to $282.1 million. Tables 3C-1 and 3C-2 mark a few cells with an asterisk where a state plan copy did not give the information; we show those as “Not in plan copy” and have not filled them in.

These are descriptions of what the federal and state texts provide, not recommendations. Each depends on facts (who survives, how the property is titled, what the state elected) that only a lawyer licensed in your state can apply.

  • Deferral and exemption for family. No recovery while a surviving spouse lives, or while a child under 21, or a blind or disabled child, survives (1396p(b)(2)(A)). That is a deferral for a spouse (recovery can follow the spouse’s death) and a bar in the child case for as long as the child qualifies. California’s statute goes further: under its age-55 paragraph the department may not claim while a spouse or registered domestic partner survives (14009.5(b)(2)(B)(i)); Florida’s likewise says the debt is not enforced if the recipient is survived by a spouse (409.9101(6)).
  • The home carve-outs. A sibling with an equity interest who lived in the home a year, or an adult child who lived there two years and provided care that kept the parent out of an institution, protects the home from the lien-based recovery while that person lives there (1396p(b)(2)(B)). The state must be satisfied that the care was given.
  • Hardship waivers. Every state must have a procedure; KFF’s March 2024 survey found 49 states reporting at least one of the three CMS examples (sole income-producing asset of survivors, home of modest value, other compelling circumstances), with 35 using the income-producing asset test and 15 a modest-value test. MACPAC’s 2020 review of state plans found 8 with a home-of-modest-value criterion: Alaska, California, Florida, Michigan, Mississippi, New Mexico, New York and South Carolina. The two counts differ because the sources and years differ. Approval rates vary: of the 10 states in MACPAC’s survey, the share of hardship applications granted in 2019 ranged from 29 percent in New York to 95 percent in Iowa (as reported by KFF).
  • TEFRA liens and their limits. A state may put a lien on the real property of a person in a nursing facility who, after notice and a hearing, “cannot reasonably be expected to be discharged from the medical institution and to return home” (1396p(a)(1)(B)); it dissolves if the person returns home (1396p(a)(3)) and cannot be imposed on the home while a spouse, a minor or disabled child, or a qualifying sibling lawfully lives there (1396p(a)(2)). Where a lien exists, recovery may come “upon sale of the property subject to a lien” (1396p(b)(1)(A)), so a recorded lien can matter even when the property later passes outside probate (our reading). 26 state plans in 2020 imposed TEFRA liens; 19 imposed post-death liens.
  • Assets outside probate. In a state that has not used the option in 1396p(b)(4)(B), the mandatory estate is the probate estate, so an asset that passes by beneficiary designation, a transfer on death deed or a living trust is outside the claim unless the state’s own text says otherwise. In Ohio, Minnesota, Washington and Oregon the texts above reach those assets. Our guides to transfer on death deeds by state, life estate deeds and Florida’s enhanced life estate (Lady Bird) deed cover the deed mechanics.
  • Partnership policies. Where a state has a qualified partnership, the amount of insurance benefits disregarded for eligibility is not recovered from the estate (1396p(b)(1)(C)(ii)); 35 state plans say they do not seek recovery for these policyholders. See the partnership and reciprocity guide.
  • Timing matters for transfers. Giving property away is a separate question governed by the 60-month look-back and a penalty period, not by estate recovery; a gift made to avoid recovery can create a period of ineligibility (1396p(c)). Our look-back page works through that formula, and the home equity and divisor table shows the state numbers.

Worked example: a $380,000 house and a $90,000 IRA (our arithmetic)

A mother received $210,000 of nursing-home Medicaid after age 55 and dies unmarried, with no child under 21 or disabled. She leaves a house worth $380,000 and a $90,000 IRA with her daughter named as beneficiary. We assume the state’s claim equals what it paid, $210,000, ignoring administration costs, the funeral, higher-priority creditors and income tax on the IRA.

ScenarioReachable by the stateState recoversDaughter receives
A. House passes by will or intestacy (any state)$380,000 probate estate (the IRA passes by beneficiary designation outside probate)$210,000$170,000 from the house plus $90,000 IRA = $260,000
B1. House passes outside probate (for example a transfer on death deed), probate-only state, no lien recorded in life$0 probate estate$0$380,000 + $90,000 = $470,000
B2. Same titling, expanded-estate state$380,000 house + $90,000 IRA = $470,000$210,000$470,000 - $210,000 = $260,000

The $210,000 difference between B1 and B2 comes entirely from the state’s choice under 1396p(b)(4)(B). In scenario A the titling does not matter. Three things can change B1: a TEFRA lien recorded during life (recovery “upon sale of the property”), a state whose plan or statute reaches the asset for another reason, and the 60-month look-back if the deed was a transfer for less than fair market value. If the mother had a surviving spouse, recovery would be deferred in every scenario.

What a reader can do with this

  • Find your state’s row. Look up the FY 2019 recoveries and the lien and partnership flags above, then read your state’s actual statute and Medicaid agency estate recovery page; for 42 jurisdictions we did not verify the estate definition.
  • Ask the agency for the number. California’s statute lets a current or former member request a statement of recoverable Medi-Cal expenses once a year for a fee of not more than five dollars (14009.5(e)); other states may give an estimate on request (not verified).
  • List what would be in the “estate.” In a probate-only state: the home if titled in the person’s name alone, accounts without a beneficiary. In an expanded state: also joint accounts, life estates, living trust assets and beneficiary-designated property, per the state’s text.
  • Check who survives and who lives in the home against the federal deferral and carve-out rules before assuming anything is claimable.
  • Bring the statute to an elder law attorney licensed in your state. The attorney drafts deeds and trusts and answers recovery and hardship questions; the match below connects you with fee-only or fee-based financial advisers who can look at the whole balance sheet, including how much must stay liquid to pay for care and the tax on any sale or retirement-account inheritance. An adviser does not decide Medicaid eligibility.

This is analysis of public documents, not investment, legal or tax advice.

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Sources, read and saved on November 8, 2026: 42 U.S.C. 1396p, Legal Information Institute, Cornell Law School; Medicaid and CHIP Payment and Access Commission (MACPAC), Report to Congress on Medicaid and CHIP, March 2021, chapter 3 and appendices 3C, 3E and 3F (macpac.gov); KFF, “What is Medicaid Estate Recovery?” by Burns, Mohamed and O’Malley Watts, September 13, 2024; California Welfare and Institutions Code 14009.5 (Legislative Counsel, via the Internet Archive); Massachusetts General Laws c. 118E, section 31 (malegislature.gov, via the Internet Archive); New York State Department of Health 11 OHIP/ADM-8 and GIS 11 MA/028; Texas Government Code 531.077 and 546.0403, Estates Code 114.106 and 1 Texas Administrative Code 373.103 and 373.105 (public.law and Legal Information Institute mirrors); Florida Statutes 409.9101 (leg.state.fl.us); Ohio Revised Code 5162.21 (Internet Archive copy of codes.ohio.gov); Minnesota Statutes 256B.15 (revisor.mn.gov); RCW 43.20B.080 (app.leg.wa.gov); ORS 416.350 (Oregon Laws mirror). The CMS State Medicaid Manual section 3810 was not retrievable and is not quoted. State-level recovery data are from FY 2019; plan policies are from 2020 and may have changed.

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